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Испытания и нервотрепка начинает тут с колл-центра, потом проходная, потом те, от кого зависит твоя жизнь - в нашем случае доктор Покровская и доктор Кузьмина. \n\nПопасть в центр без пропуска невозможно....","fullText":"Очень рад, что многим тут помогли, но не всем тут везет одинаково. Испытания и нервотрепка начинает тут с колл-центра, потом проходная, потом те, от кого зависит твоя жизнь - в нашем случае доктор Покровская и доктор Кузьмина. \n\nПопасть в центр без пропуска невозможно. Много раз было так, что доктор по имейлу приглашала меня на определенное время, но не считала нужным заказать пропуск. При этом номер телефона доктора не дадут даже под страхом смерти. В итоге ты ждал аудиенции по теме трансплантации костного мозга долгое время, а в назначенный момент не можешь даже попасть внутрь. На проходной только одна из сотрудниц за 3 таких случая проявила понимание и сама звонила в отделение чтобы кто-то нашел доктора и та выписала пропуск. \n\nДальше ад был в том, что донора костного мозга нам нашли, но делали все чтоюы неформально отказать. Когда два кмн с траурным видом тебе говорят что трансплантацию ты не перенесешь и умрешь в муках, ощущения не самые приятные. Ни такта, ни этики. В итоге признались что дело в недостатке финансирования на одного пациента, а в нашем случае понадобится гораздо больше средств. «Мы от вас не отказываемся, но лучше обратитесь в Боткинскую». Признаю, совет был хороший, и благодарен за него. Но учреждение и доктора - видимо кому как повезет. Нас они со счетов списали практически сразу в ноябре 22 (очень тяжело идущий омл), а в марте мы закончили попытки решить вопрос в нмиц. 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