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Особенное «спасибо» хочу сказать врачу иммунологу-аллергологу-педиатру с вольской 6, Рамазановой Ю.В., как иммунолог может пропустить и закрыть глаза на все как мы узнали симптомы?! На тот момент доченьке...","fullText":"Очень хочу сказать, в наше время очень сложно найти хороших и грамотных врачей, так по халатности нескольких педиатров у моей дочки во время не диагностировали первичный(врожденный) иммунодефицит. ПИД это не СПИД, это врожденная генетическая поломка гена, при которой иммунитет не работает, у нас оказалась самая тяжёлая форма-ТКИН(тяжелый комбинированный иммунодефицит), при этой форме отсутствуют оба иммунитета. Росла дочка как обычный ребёнок, но звоночки были(малый вес, кандидоз, было один раз нагноение пальчиков, бронхит и самое главное не заживающая прививка бцж), мы обследовались в Саратове и по месту жительства у платного педиатра. Меня постоянно волновало бцж, но ответы врачей были - заживет; никто не будет делать ринактивацию; чем страшнее тем лучше, формируется иммунитет. Особенное «спасибо» хочу сказать врачу иммунологу-аллергологу-педиатру с вольской 6, Рамазановой Ю.В., как иммунолог может пропустить и закрыть глаза на все как мы узнали симптомы?! На тот момент доченьке был 1 год и месяц, когда мы попали к ней, и если б она была квалифицорованый врач, то хотя бы предположила и дала направление на анализ(иммунограмму). У нас бы было больше шансов чтоб для того чтоб выжить и провести операцию по пересадке костного мозга. Но .... увы узнали мы об этом диагнозе поздно. По поводу стационара Вольской 6, хочу отметить очень безобразное отношение, долго рассказывать, перейду к сути. Пролечившись в инфекционной больнице по кишечной инфекции и пневмонии, нас выписали(сама настояла), нужно было доп. обследование и мы поехали на Вольскую 6, мало того что меня пытались с ребёнком грубо говоря выгнать, в итоге 5 часов держали в холле с больными детьми, решая в какое отделение нас положить. Бог знает что мы без иммунитета могли там нацеплять(но на тот момент о диагнозе ТКИН мы не знали), вечером уже пошли симптомы ротовирусной инфекции, на утро подтвердили что у дочки ротовирус и нас отправляют обратно в инфекцию, ее капали всю ночь, она была в тяжелом состоянии, перед отправкой температура поднялась 39,9...и это никого не остановило, меня попросили быстро собрать вещи и одеть малышку, тут же приехала скорая и нас забрали. Вот такие прекрасные врачи!!!!! В итоге доченька умерла в Рогачевской больнице из-за того что поздно приехали! 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